Tuesday, November 1, 2011

Adrenal Insufficient United

Lately I have been crusading, if you're on my facebook page you've probably already noticed. More then half of my posts this past week have been reminders for my friends to sign a petition and pass it along to their friends. Why?

Here's the deal, if the Kiddo was ever in an accident and I was not nearby or alert then the responding medical personnel would have NO clue how to keep him alive. In addition even if by some miracle they knew how they wouldn't be able to anyway because the emergency injection that he would need is not one they carry. I had grudgingly almost accepted that there isn't any real way to change this... except that there is, a group of women started an organization Adrenal Insufficiency United and a petition that will hopefully help to create a change in responder protocols. If you haven't signed the petition yet please do, all we want is training and the correct shot to be carried.

One of the groups creators was interviews by her local radio station recently. The podcast is eye opening, and eerily familiar. It's her story, but it's also ours. The only difference is that kiddo's AI stems from his Pit not his adrenals, it's called panhypopituitarism but the symptoms and crisis issues are all the same.

She mentions in her interview that the University of New Mexico has an AI training program for ems. I went and looked it up, it's nothing I didn't already know but if any of you wanted more information feel free to go give it a look.

I have printed out flyers to have the Kiddo's teacher send out asking for signatures, I handed some to the apartment complex office and even sent some with a friend to her church.

The group has made contact with the Secretaries office of the US Department of Health and Human Services in D.C. Right now the petition is up to 1300 signatures. Listen to the podcast to see why our request wont cost much and makes sense, then sign the petition and pass it along.

Every signature we can get strengthens our cause...

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